|
|
Privacy Policy
Privacy Commitment
Cystic Fibrosis Canada is committed to protecting the privacy of the personal information that you,
as members, donors, volunteers, and stakeholder share with us. We value and respect the privacy and
sensitivity of your personal information and wish to be transparent and accountable in how we manage and treat
the personal information we hold. We take the issue of privacy very seriously.
Personal Information
Personal information includes any information that specifically identifies or distinguishes
you as an individual and is provided to or collected by Cystic Fibrosis Canada.
In distinguishing you as an individual, this can include your name, home address, age, gender, identification
numbers, employment, volunteer or donor history. Business contact information and certain publicly available
information, such as names, addresses and phone numbers published in a telephone directory are generally not
considered personal information.
Safeguards for Personal Information
Cystic Fibrosis Canada endeavors to maintain physical, technical and procedural safeguards that are
appropriate to the sensitivity of the personal information in question. These safeguards are designed to
prevent your personal information from loss and unauthorized access, copying, use, modification or disclosure.
On an ongoing basis, we educate our volunteers about the safeguarding personal information.
Together, our safeguards and policies help ensure that your personal information is used appropriately and responsibly
in achieving the purpose for which it was shared and collected from you.
Collecting, Using and Disclosing Personal Information
Unless authorized or required by law, your personal information is only collected, used and
disclosed with your consent. We understand that, depending on the sensitivity and nature of your personal
information, your consent may be written or verbal, express or implied. Upon giving us notice, your consent
for any collection, use or disclosure of your personal information can be withdrawn at any time.
In all instances, Cystic Fibrosis Canada personnel only collect, use and disclose your personal information on
a 'need-to-know' basis and only for such purposes that are reasonable. In the case of Cystic Fibrosis Canada,
this purpose is primarily for fundraising for the Cystic Fibrosis Canada or advocacy for our mission.
We may collect personal information from you during the course of various activities, for example for the purposes
of fundraising events, projects or campaigns. Your personal information may also be collected to process
volunteer and associate membership with Cystic Fibrosis Canada, to process your gift and donation receipts,
to forward information to you regarding Cystic Fibrosis Canada, Cystic Fibrosis Canada events, ongoing fundraising activities,
and to contact you to verify the accuracy of your information.
We use personal information for the purposes of managing our volunteer, donor, and recognition programs and for
developing new programs. Quality assurance is important to us and information statistics assist us in being effective and resourceful with the resources
and gifts provided to Cystic Fibrosis Canada for carrying out the mission and vision of the organization. Cystic Fibrosis Canada
does not receive personal information from patients receiving our assistance. Systems are in place so patient
anonymity is safeguarded. Where possible, we attempt to gather and use aggregate (non-identifiable)
information in the place of identifiable information. Cystic Fibrosis Canada may need to engage a third-party, for example,
to provide administrative or support services to us whereby the third party may need to use personal information.
In these cases, the third-party is bound by our privacy policy and privacy practices.
In general, personal information is only disclosed for the purposes it was collected.
We assure you that Cystic Fibrosis Canada does not sell our donor or volunteer lists with other organizations.
Personal information can be disclosed without your consent if the information is publicly available.
When processing in memoriam donations, it has been a reasonable expectation of the donor to have your name
and address forwarded to the next of kin, or to the individual(s) you identify to us, to inform them of your
thoughtful gift to Cystic Fibrosis Canada on behalf of their loved one.
Your Wishes are Important to Us
We seek your confidence and trust on how we collect, use and disclose your personal information.
We encourage you to express any wishes you may have on how we collect, use or disclose your personal
information. For example, you may wish not to have your name included in a direct mailing list or recognition
listing. We routinely provide individuals notice and opportunity of this choice through our correspondence,
newsletters and recognition listings.
Depending on the type of information you may decide not to share with us,
we might be limited in our ability to provide some ongoing information about Cystic Fibrosis Canada to you, e.g.
regular mailings event or volunteer program information.
We kindly request that you contact us to update your file if you have any change to your contact information
or other personal information shared with us. This will assist us in maintaining accuracy of your information.
Access to Your Personal Information
You can ask to see the personal information that we hold about you. If you want to review,
verify or correct your personal information, please contact our Privacy Officer using the contact information set
out below. Please note that any such communication must be in writing.
When requesting access to your personal information, please note that we may request specific
information from you to enable us to confirm your identity and right to access, as well as to search for and
provide you with the personal information that we hold about you. We may charge you a fee to access your
personal information; however, we will advise you of any fee in advance. Note we may require a deposit before
your access request is processed. If you require assistance in preparing your request, please contact the
office of our Privacy Officer.
Your right to access the personal information that we hold about you is not absolute. There are instances
where applicable law or regulatory requirements allow or require us to refuse to provide some or all of the
personal information that we hold about you. In addition, the personal information
may have been destroyed, erased or made anonymous in accordance with our record retention obligations and
practices.
In the event that we cannot provide you with access to your personal information,
we will endeavour to inform you of the reasons why, subject to any legal or regulatory restrictions.
Contact Information
Questions, concerns or complaints relating to Cystic Fibrosis Canada privacy policies for personal
information? Please do not hesitate to contact us at
info@cfcalgary.ca.
Website and Email Communication
We use password protocols to protect personal and other information. We are regularly
reviewing security, business recovery and information protection practices as technology and complexity increases
to ensure that we maintain the security and privacy of your information. Our website may contain links to
other sites which are not governed by our Privacy Policy. On our website, we may monitor traffic patterns,
site usage and related site information to optimize our ability to provide information about Cystic Fibrosis Canada to you.
Please note that email transmission is not always a secure method of communication and
that any personal or confidential information sent to us or sent to you by email cannot be reliably protected.
Updating of Privacy Policy
We are regularly reviewing our privacy practices for our various activities, and will update our
policies as required. This website can be reviewed on an ongoing basis for our most up-to-date information.
|