Newly Diagnosed

It’s ok to go slow. We are there for you.

If you care about someone who has been diagnosed with Cystic Fibrosis, you undoubtedly have many questions and concerns. You may feel relieved, angry, or perhaps sad with episodes of fear. You may feel overwhelmed and find it difficult to function, make decisions and to know what your next steps are. We want you to know that it is perfectly natural to feel this way and this site is designed to provide you with the guidance and support you will need to help you manage and develop a plan of action.

Before you begin reading about Cystic Fibrosis, there are a few things to keep in mind:

• More and more children with Cystic Fibrosis everyday are living longer life-span than a just a few years ago and enjoy many years of normal activities.
• Scientists around the world are working toward finding a cure. Many new developments, such as recent medication enhancements, make positive differences in the lives of people living with Cystic Fibrosis.
• Everyone with Cystic Fibrosis travels a different road.

When you read the information in this website, remember that we have endeavoured to include most of the symptoms and reactions for general information. The symptoms and treatment for your loved one may be unique.

As you read, keep a note pad handy and jot down questions for your doctor. Read parts of the site at a time, closing it down if you start to feel stressed or tired. The site has links that make it easy to flip from one section to another, including a Frequent Asked Question section, Clinics in Calgary, Education brochures and a forum where you can anonymously and securely ask questions or read what other have written about caring for someone with Cystic Fibrosis. It is a great way to share and learn from others that are going through similar experiences as yourself or your loved ones.