Cystic Fibrosis Clinics

Did you know that Calgary has two separate and distinct Cystic Fibrosis clinics providing support for patients and families?

Both Cystric Fibrosis clinics offer superior specialized support and care via a multi-disciplinary team made of up the following:

  • Clinical Resource Nurse:  As your primary contact person, the CRN is your resource person for information about CF. The CRN is responsible for the overall coordination and planning of patient care.
  • Respirologist:  A breathing and lung specialist, this doctor will focus on issues related to growth, nutrition and liver problems.
  • Social Worker:  Provides support and counseling to help minimize the impact of Cystic Fibrosis on family life. Also provides information about hospital and community support services and financial resources.
  • Physiotherapist:  Teaches you airway clearance techniques and makes sure you understand how these techniques will help you maintain good lung function. The physiotherapist will also help you with your home physiotherapy program.
  • Clinical Dietician:  Assesses growth and nutritional intake. Will also provide you with education and support regarding nutrition and feeding ion order to promote optimal growth and development.
  • Pharmacist:  Helps you and the other team members find the best mediations to use and teaches you how to use them. The pharmacist will also provide you with any drug information you need.
  • Respiratory Therapist:  Administers the breathing tests that will help monitor lung health.

How Often Will a Patient Attend Cystic Fibrosis Clinic?

Typically, the average patient will attend clinic every four months. If warranted, and based on the individual needs of the patient, the frequency of visits may be more or less. It is important to note that Cystic Fibrosis clinics are 100% covered - there are no fees or costs to attend.

What can I expect on clinic day?

Each visit takes between 1-4 hours. You should expect to see each member of the Cystic Fibrosis team. Typical clinic activities include:

  • Measuring height, weight and blood pressure.
  • Muscle and fat measurement.
  • Pulmonary Function (Breathing) tests for patients 4 years and older.
  • Lab tests
  • Chest X-rays

Whenever possible, other appointments such as Ear/Nose/Throat consultations or ultrasounds will be scheduled for the same day.

Preparing for The Clinic

There are many things you can do to prepare for your clinic visit:

  • Have your questions ready before each visit.
  • Check to see if any medications need to be refilled personally or by phoning the outpatient pharmacy 1 to 2 days before your appointment.
  • If applicable, make sure you have your physiotherapy device with you.
  • Dress in loose, easy-to-remove clothing.
  • If you are bringing your child to clinic, bring snacks, activities and/or toys to keep them entertained.